Jen had her final Car-T injection a week ago. Like last time, her reaction was much stronger combined with the Keytruda. The night after the injection Jen was riding a high fever for most of the night. I was taking her temperature every 10-20 minutes all through the night and constantly applying ice packs to reduce her fever which got as high as 104.1. By the morning her fever was mostly gone. She was extremely out of it the next day but we did manage to keep her out of the hospital this time. Despite the higher fever, she rebounded a little quicker this time.
Unfortunately, by the end of last week, Jen got worse again. We believe it was due to a likely UTI. Of course it hit hard on a Friday of a holiday weekend. Fortunately, her doctor was on call and he prescribed an antibiotic. After a few days Jen has again rebounded and seems to have mostly recovered now. We have also been dealing with a really bad pressure sore which developed on Jen's foot from wearing her AFO (the orthotic device worn on her drop foot). Wounds are tough to heal when someone is taking Avastin - another drug Jen is on. Hopefully the treatment regimen we are following will help it to heal quickly.
Jen's next scan is tomorrow. We will see whether the combination of therapies we have been using has had any effect.
Meanwhile, one of Jen's old high school friends has been visiting since yesterday. Jen has been enjoying spending time with him as well. He's a big music guy and we have been spending a significant amount of time listening to music together.
Please continue to keep Jen in your thoughts and prayers. I will try and post tomorrow or Wednesday with news of Jen's scan.
No comments:
Post a Comment