Saturday, January 9, 2016


Happy new year!  New year; fresh start.
As you can see from Randy's post below, my first scan of the year was yet again stable! And that was aided only by my ketogenic diet, and the novocure device. There may be remnants of last November's 12th chemo cycle, but only that--remnants. I get my next scan in 6 weeks.
I never make New Year's resolutions, except for the one I made last year; which, was to fight this cancer with everything I had in me. And while I stayed stable all year, I found myself getting lazy. I was not fighting with all I had. My scans were stable, and I began to feel relaxed, and complacent. Which is an arrogant place to be when you have one of the most aggressive types of cancer possible. I am LUCKY to have lived this long with this horrible disease, and it is certain that I intend to keep going.
This year my resolve is to continue that fight, with even more vigor. This is where the rubber hits the road, and I know it. I begin this year without the aid of chemo.
This year, I resolve to really listen to what my body is telling me to do. To be active EVERY day, whether that means a little gardening, or a lot, to do my prescriptive exercises as assigned by my therapists. To give myself the rest that my body needs, both physically and mentally, do more research, to keep measuring my food exactly, and stay on the novocure. My own immune system is in charge, and I will see where it takes me.
Thank you all who have helped me and Randy through all of this, either with meals, or rides, support emotionally, financially, or with your prayers, good vibes, and LOVE. We are so blessed to have you all.
Wish me well as I embark on this journey called 2016!

Thursday, January 7, 2016

Another Stable Scan!!!

Yesterday Jen had another scan and it was again stable!!!  She is now at almost 16 1/2 months since diagnosis and almost 16 months progression free.  In the world of Glioblastoma Multiforme this is extremely good, especially considering Jen was unable to have surgery to remove any of the tumors.  This scan was especially encouraging since Jen has been off chemo for almost 2 months now (the longest she has gone since beginning treatment).  This was certainly a great way to begin the new year.  Her next scan will be in 6 weeks on Feb 17th.  Thank you to everyone for all the positive support and encouragement.

Tuesday, January 5, 2016

A Quick Update and some pictures from Deutsch's Christmas Party

Well it is a new year and Jen is still fighting strong.  Tomorrow Jen gets her next scan - please keep Jen in your thoughts and prayers as we look forward to a positive scan.  Jen has now been off chemo for 2 months.  This is her longest period without chemo since she began this fight.  Tomorrow's scan will be the first one outside of the chemo's influence (although there could be some residual effect).  Meanwhile, without the chemo on board Jen continues to feel stronger each day and we are hoping that her immune system will be able to fight harder now that it is not constantly being attacked from the chemo.  I will try and post the scan results sometime tomorrow or Thursday.

Some of you may have noticed that there is a slight change to the website.  The front end website no longer exists (after they wanted an 800% increase in hosting fees).  The blog was really all that was being updated anyway.  The domain still works though, and will now take you directly to the blog.

I know Christmas is past and I am late in posting anything, but Jen's work Christmas Party was just too much fun and I wanted to share some pictures from the event.  The theme was Après Ski and the dress code was either back at the ski lodge or black tie.  Jen chose ski attire.  The event was held at the newly revamped historic Clifton's in downtown LA - a very cool space.  Anyway, here are some pictures from the night.

Yes, it is snowing in LA thanks to a little help from Hollywood.
Deutsch adds some amenities to Cliftons.
Notice the squirrel on Jen's shoulder that came along for the ride.

Jen & I with her boss Cluckie and Mara.

Much of the décor is actually part of Clifton's lodge theme.

Cluckie, Mara, Jen, & Norman

This tree is amazing and stretches through all 4 stories
of the building.

Gaming tables for charity were on the third floor.


Of course there was a DJ.

If you look by the fireplace you can see me taking a picture
of Jen (leaning against the tree)

Jen with a ski bunny.