Last Wednesday, the day of Jen's infusion appointment, she became extremely lethargic and only semi responsive. It was a very pronounced decline from even the day before. Because of the sudden onset, I thought perhaps there was an underlying reason such as an infection. Jen did have an elevated heart rate and a low grade fever. After speaking with her doctor, we went to the ER and rescheduled the infusion.
The ER did a complete blood work up, but didn't really find anything. They put her on an antibiotic as a precaution and gave her some fluids. She did seem to perk up a little and they did discharge her that evening. The next day, while trying to have Thanksgiving dinner with a few friends, Jen again began to tank. In the last 4 days Jen has been mostly out of it with limited moments of seeming clarity. It has also become extremely difficult for Jen to take her pills. She has trouble swallowing. This also has presented challenges to Jen eating regularly. Due to the fact that for the past couple of days Jen has still had an off and on fever - reaching about 100°, I was holding out hope that she might still have an underlying condition from which she could rebound and perhaps have a little more time, but it's looking like that is now unlikely.
Hospice has now been called in and they will be here later today. Jen probably has 2 weeks at best left. As time goes on she will probably become more and more unaware. Jen has fought a long hard battle and is in the top 5% of Glioblastoma survivors, but unfortunately it seems as if the cancer has finally won. I'm crying even now as I write this, and I know reading this will affect many of you as well. God, I Love Jen so much! I am so deeply heartbroken that it has finally come to this. If anyone wishes to see Jen, please call and I will arrange for you to see her. Obviously, sooner is better than later. I can't promise how aware/awake she will be, but she does still have moments of clarity and hopefully you will be lucky enough to catch her in one of these moments.
Fortunately, Jen did get in a visit for a couple of days with her sister a week ago - before things got as bad as they are now. I'd like to share a picture of the two of them.
![]() |
Jen and her sister Robin. |
No comments:
Post a Comment