Thursday, November 16, 2017

Stable Scan!!

Jen's scan today was stable!!! Thank you for all the well wishes and prayers.  We certainly have something to be thankful for this Thanksgiving.

Monday, November 13, 2017

Jen's Walking Warriors Raises $4,150

Jen's Walking Warriors raised $4,150 towards brain cancer research!  The event raised almost $85,000!

Thank you so much to everyone that participated.  We had several people show up the day of the event who signed up to walk.  Including Jen, we had 12 people walking for her team and we even had a few friends show up just to cheer us on and show their solidarity.  It was a pleasantly cool day by the beach and the walk definitely was a great inspiration for Jen.

We would also like to thank everyone that sponsored Jen's team.  Your generous donations are truly appreciated and meaningful.  Hopefully, the money raised will contribute to a cure in the near future.

Jen's next scan is this Thursday.  Please continue to send all your prayers and positive support her way.  I will keep you updated.

Below are some pictures/video from the event:

Jen's Walking Warriors!

On stage with other survivors.

Jen with her plaque given to the survivors.

Friday, November 10, 2017

Jen's walk update

Thank you to everyone who has signed up to walk and/or sponsor Jen's Walking Warriors!

Online registration has closed, but it is not too late to walk with Jen.  Anyone interested can still sign up even on the day of the walk.  You just need to show up a little earlier to make sure you get registered.

Sponsoring the team though, can still be done online.  So this is a final call for anyone who has not yet given to take the time to please do so.  All proceeds go to fund brain tumor research and your donation is tax deductible.

Jen is excited and looking forward to seeing and walking with all those who are joining her this Sunday.  Even if you are unable to walk, you are welcome to attend the event and cheer Jen on!

The link again is:

Wednesday, November 1, 2017

Walking for a cure!

Jen has now completed her 3rd cycle of chemo and is just beginning to recover from the effects.  We have been weighing whether or not to go back east in order to make appointments with Johns Hopkins, NIH and Duke.  The entire clinical process has been nothing but frustrating and we seem to be encountering endless road blocks.  We now have to rule out NIH at this stage as they require 20 slides of brain tumor tissue to be sent to them before they will even entertain scheduling an appointment.  Jen only has about 30 slides available.  To send 2/3 just to secure an appointment for an institution that may not even have a single trial for which Jen is eligible is a non starter.  This would prevent her from pursuing any other possible trials due to not having any tissue left to send.  Johns Hopkins is also not looking ideal at this stage.  Jen's multifocality really does eliminate her from most trials, but we are still investigating and have been working closely with many local institutions as well.

Since we are not going back east at this time, Jen is ready for her next challenge.  I mentioned on this blog a little while ago that Jen was going to be participating in a walk for brain cancer research.  I haven't mentioned it in a little while because we weren't sure Jen would be able to participate.  But, Jen is resolved to take this on.

We welcome anyone in the LA area to join us for this walk on Sunday, November 12.  It is at Dockweiler beach near Marina Del Rey.  It is a glorious level & easy walk along the beach area.  The walk is 5 kilometers or about 3 miles.  It starts early in the morning and should be done before noon.  The info for the walk is on the event details tab at the top of the webpage linked at the bottom of this post.

For those unable to walk, you can still help by sponsoring Jen's team: Jen's Walking Warriors.  Every dollar raised goes directly to research.  The funds we raise will be targeted towards UCLA specifically.  UCLA is Jen's primary care facility and they really do great work there.  Anything you can give is appreciated – no amount is too small.

If you do wish to join us, please sign up.  You can also donate as well if you are able to.

Jen is looking forward to taking this on.  She sees it both as a personal challenge and a chance to give back as well.  There are many advances being made every day and the dollars we raise today will help to find a cure for tomorrow.

Will you please walk with Jen or sponsor her team: Jen’s Walking Warriors.  The link is below.