Thursday, November 29, 2018

A quick update

As I previously mentioned Jen has been with hospice now since Monday.  She sleeps for most of the time, but she does have many moments throughout the day where she is alert and responds.  We have had many visitors over the last few days and I encourage anyone who wishes to visit to just reach out to me and you are welcome to come by.  If you don't know how to contact me, you can always comment either to this post or in the messages of love and support.  Let me know that you wish to reach me and I will try and contact you directly.

Many of Jen's visitors have been lucky enough to catch her in a moment where she is alert.  In her best moments she will smile, say hello, talk a little, and even reciprocate a hug.

She has been able to drink enough fluids, and eat most of 3 meals a day.  It takes a while to get through a meal, but I have enjoyed spending the time at her bedside while she gets through each meal.  We have been listening to the playlist from our wedding, and reception.  Next up we will start listening to the playlists from our many music parties we have enjoyed.  Jen says she is enjoying the music, and sometimes I see pretty amazing responses.  Last night, when Cab Calloway's song "Minnie the Moocher" came on, her eyes lit up, she gave a big smile and mouthed the words to the chorus.  "Hi-dee hi-dee hi-dee hi, Whoa-a-a-a-ah, He-e-e-e-e-e-e-y, Oh-oh-oh-oh". This morning when Peggy Lee's "Fever" came on she began doing the finger snaps from the song. She has responded positively to many other songs as well. It really is precious to see that she still gets some moments of pleasure.

Overall, she doesn't seem to be in any real pain. Whenever she is alert, I always check in with her and she has always indicated that she doesn't have any. This at least is a source of relief. No one can say exactly how long Jen has. Obviously it will probably go pretty quick once she gets to the point where she can't eat anymore. Until then, as long as Jen isn't in any pain and continues to have moments of clarity and a little joy, I am grateful for each day we have. Again, all are welcome to visit - repeat visits are okay as well. Thank you to everyone who has come by and also to everyone who has been helping me along the way.  We are both truly blessed to have so many amazing friends and it is such a comfort to see all the outpouring of love for Jen.

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