Monday, August 27, 2018

Moving forward with surgery

Jen has been cleared for surgery.  Both her platelet and white counts have risen enough to proceed.   She is scheduled for tomorrow at 2pm.  Following the surgery, Jen will most likely be in ICU for a few days.   Once she has a room, I will post the info for those who may wish to visit.

There are obviously many risks associated with brain surgery and Jen is still at an increased risk of infection due to the thinness of her skin from radiation  and Optune.  But, there are risks to not trying as well.

The concern is still Jen's communication ability.   She has already had a severe hit in the past few months and the surgeon won't be able to remove all of the tumor.  What is left behind will mostly be in her language area and we will have to wait almost 3 weeks after surgery before the Car-T can be injected into her brain.   Hopefully,  any further deterioration during this time will be minimal.   Jen's surgery will be done as an awake procedure so that the surgeon can be as aggressive as possible while hopefully preserving as much function as possible.

In spite of the many things that can go wrong,  we are hoping for a few crucial things to go right.   This is probably Jen's best chance for any meaningful outcome.   Things haven't been going in Jen's favor for the past few months - it's time to hopefully change that.  As always,  please continue to keep Jen in your thoughts and prayers.

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