Wednesday, May 13, 2015

Shhhh what's that sound?

Is it the sound of a freight train coming? You betcha!  That far off rumble you're hearing in the distance is the sound of a wellness freight train coming this way with a full payload of brain cancer healing! I know this because it's my brain, and my brain is my mind, and is my very soul. And deep down in my soul I can feel that rumble coming my way.

I know that Randy posted yesterday quoting the MRI report as "may be marginally improved from before." Even though it's a teeny weeny change, the report showed some movement in a positive direction.

Randy probably posted the statistics of how many people die per year from Glioblastoma (GBM); it's a shocking number. Randy probably also told you all that Glios are the most serious and deadliest type of brain tumors.  They have the ability to double in size in two weeks. In fact, during my stay at UCLA last fall where I was being fed with toxic food (chocolate pudding, and other sugary, and starchy stuff), and given boatloads of much needed steroids (to heal from the brain biopsy), my tumors did indeed triple in size!  But since I was released back into the wild from the hospital, and have been more in control of my diet and cancer, my scans have been mostly stable since then.

Randy's probably already posted about this too, but I do not have one but at least four distinct areas of tumor- they're all part of the same thing.  It's like a gob of melted cheese that oozed down into other areas of my brain all stringy and gooey. And the location of some of them are in sensitive areas that make them inoperable.

I'm not tolerating the full dose of the chemo treatments, which comes in cycles.  I'm about to start cycle 6.  The goal for UCLA is at least 12 cycles. At the dosage I'm on, I don't know if it's doing anything to move the needle at all.  But believe me, I'm throwing everything else I can at at it!

You've seen the pictures of my arrays being placed on my head for the Optune device - which hopefully is having a positive effect.  I'm on a very strict Ketogenic diet (thanks to Jen and Tim for helping here), and that could be helping as well.  I've added Turmeric supplements, Green Tea, and am about to incorporate a ProBiotic. I meditate, I do Physical Therapy, Speech Therapy, and continue to live my life with gusto and LOVE!

Any or all of this could be working synergistically, and some of these self-guided treatments (oncologist approved, of course) are new.  So that's the long story as to why I hear that distant rumble of that freight train coming!









2 comments:

  1. I LOVE this entry! You're a gifted writer, Jen! I feel so encouraged by you! Chuck Norris has nothing on your fighting skills! <3

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  2. This post made me all smilie... Smiley? Whatever, I'm happy! Glad you are too! Keep kicking ass! Tashina and I went to DC last night and I thought about you the whole trip. Wish you were there!

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