Friday, December 19, 2014

Jen's Progress So Far

As many of you know, the last 5 months have been extremely difficult for us.  After an initial grand mal seizure back in July, we first were on a process of discovery which led up to Jen's brain surgery in order to biopsy 1 of several masses in Jen's brain.  Unfortunately the tumors are inoperable due to their size and proximity to too many eloquent areas of the brain.  Jen was diagnosed with Glioblastoma Multiforme - a particularly aggressive form of brain cancer.  After the surgery Jen had a few complications and has been in physical therapy and speech therapy ever since.  Jen had continued to have seizures (petite mal) several times a day until the last 6 weeks when we have finally gotten them under control.  She has had only 1 seizure in the last 6 weeks.  Jen has already completed a full course of radiation on her tumors.  We are proceeding with Chemotherapy as well, which Jen will be continuing to undertake for the foreseeable future.  Jen has also been doing a Ketogenic diet.  This is a very difficult diet to follow, but there is some evidence that it may be of help in fighting cancer.  We are also looking to begin Novocure TTF which uses an electric field to disrupt cancer.  This has shown some promising early results.  For those interested in learning more about the treatment options we are exploring I have included the following links:

http://www.novocure.com/
http://www.charliefoundation.org/

I would personally like to thank everyone who has been there for us and shown us support.  We both appreciate it more than we can say.

On Monday, Dec 22, Jen will have her next MRI.  The best Christmas gift I could wish for would be for there to be some shrinkage in the tumors.  The very least we would hope for is for there to be no change.

Please keep us in your thoughts and prayers during this holiday season.  Be with those you care about and let them know how much they mean to you.  Life is precious and none of us know how much time we have.  As for Jen and I, we plan on fighting and doing everything we can.  We plan to cherish each and every moment we have to spend together.  Thank you, and God bless.