Wednesday, November 1, 2017

Walking for a cure!

Jen has now completed her 3rd cycle of chemo and is just beginning to recover from the effects.  We have been weighing whether or not to go back east in order to make appointments with Johns Hopkins, NIH and Duke.  The entire clinical process has been nothing but frustrating and we seem to be encountering endless road blocks.  We now have to rule out NIH at this stage as they require 20 slides of brain tumor tissue to be sent to them before they will even entertain scheduling an appointment.  Jen only has about 30 slides available.  To send 2/3 just to secure an appointment for an institution that may not even have a single trial for which Jen is eligible is a non starter.  This would prevent her from pursuing any other possible trials due to not having any tissue left to send.  Johns Hopkins is also not looking ideal at this stage.  Jen's multifocality really does eliminate her from most trials, but we are still investigating and have been working closely with many local institutions as well.

Since we are not going back east at this time, Jen is ready for her next challenge.  I mentioned on this blog a little while ago that Jen was going to be participating in a walk for brain cancer research.  I haven't mentioned it in a little while because we weren't sure Jen would be able to participate.  But, Jen is resolved to take this on.

We welcome anyone in the LA area to join us for this walk on Sunday, November 12.  It is at Dockweiler beach near Marina Del Rey.  It is a glorious level & easy walk along the beach area.  The walk is 5 kilometers or about 3 miles.  It starts early in the morning and should be done before noon.  The info for the walk is on the event details tab at the top of the webpage linked at the bottom of this post.

For those unable to walk, you can still help by sponsoring Jen's team: Jen's Walking Warriors.  Every dollar raised goes directly to research.  The funds we raise will be targeted towards UCLA specifically.  UCLA is Jen's primary care facility and they really do great work there.  Anything you can give is appreciated – no amount is too small.

If you do wish to join us, please sign up.  You can also donate as well if you are able to.

Jen is looking forward to taking this on.  She sees it both as a personal challenge and a chance to give back as well.  There are many advances being made every day and the dollars we raise today will help to find a cure for tomorrow.

Will you please walk with Jen or sponsor her team: Jen’s Walking Warriors.  The link is below.

https://www.wizathon.com/heroesofhoperace/teams/3627

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